Tuesday, November 2, 2010

Getting Back on Track

Today has been a much better day.  Paige is back to herself!  She opened her eyes and was alert for the first time in a couple days.  She also screamed when she got weighed and let the nurse know she was not happy about being naked on the scale.  It was SO good to see.  As long as she continues to act so well tomorrow and her more recent labs and cultures look fine, they are planning to place her PICC (peripherally inserted central catheter) tomorrow morning.

Andrew is continuing to not like his feeds all that much, but the vomiting is more like spit up now.  Much more manageable.  We are continuing to give him very small volumes through his feeding tube and are still praying for a big poop -- hopefully Daddy will get the privilege of changing that tonight:)

Jack and I have been able to hold Paige and Andrew separately for the last week or so, but they still have too much equipment to hold them together.  Their lines and tubes have kept them on opposite sides of the rooms for their holding sessions.  They finally decided to take Paige off her oxygen (mostly because her belly was so distended) and see how she did.  This enabled us to put two chairs together in the middle of the room so we could all be together.  We still aren't quite able to hold both of them at once, but we did get our first family photo!

4 comments:

  1. Great family photo! Hope you can take one at home soon! Thinking about you all each day. I can not imagine how hard this is. Please let me know what I can send to you all to make your days any brighter or easier in any way. I want to send something, just want it to be something that will help you.

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  2. Great news! I'm so glad things are looking better for you all- and this photo is adorable! I can't wait for you to be able to hold them together and take them home!!! Please let me know if you need anything at all.

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  3. ADORABLE family photo!!!! I love all the updates, and am so happy to hear that things are looking better! I cannot wait to "hug their necks"...carefully!

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  4. Woo hoo! Family photos are awesome and I am so thrilled to see this first one of your family, Katie and Jack! Keep the updates coming--I love checking every day and knowing what's up. Love you and thinking of you as always!

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